This is my Samuel today. And yes, I’ve shown you this picture, but he is so happy. Full of life. It’s a perfect comparison picture for you all.
This was what he looked like on January 15, 2011. I hate this picture. I simply cannot look at it without my eyes welling up with tears. I hate that this is what he looked like and doctors told me he was fine.
This was my post on January 17, 2011. I finally, finally, finally, found a doctor who listened. Who saw his labwork and realized that the cheerful, and very tiny, little boy was seriously sick.
This was me just about a year ago. Me with no sleep. Me at the hospital for several days, sitting in a chair with my messy hair, determined to find an answer. I was mad — I wanted solutions for that sweet baby sleeping on me. I was sitting in the hospital praying and contemplating the new journey that my life was taking. But, more than that this was me, becoming determined, becoming a fighter, an advocate, for my boy.
This was me. In May. With Samuel, the little boy, that emerged from the shadow of a silent disease.
This was Samuel before his second biopsy in May. His eyes have sparkle again. His biopsy? It showed significant healing to his small intestine. Why is that important? In an individual with Celiac Disease, which is an auto-immune disease, the villi are destroyed by gluten. Nutrients are not absorbed. That picture of Samuel last January? He was starving. And that is why I hate it. This picture? Life.
This is Samuel in June. See how his hair began to grow? And how he’s alert and awake? He literally began to regain his life, bite by gluten free bite as the year went on.
Now, he is no longer starving, in pain, hungry, tired, lethargic, or fighting constant infections and fevers.
He is thriving.
All because he does not eat any gluten.
This is why I fight for Celiac Disease Awareness.
So today I throw my arms in the air and give praise to our Father for this past year. I thank Him for the good times and still praise His name in the hard. He is worthy of my utmost praise. Blessed be His name!
Now, as we move forward, I will walk with Samuel bravely. Fighting for him. Knowing that his immune system is still compromised, but not sitting in worry about it. Doing my best. Praying, praying, and praying.
And spreading awareness.
So today, I ask that you too, would take a moment and
share Samuel’s story of Celiac Disease.
Remember, this was him in January last year.
And this is him today.
|updated pic 5/2012
Sharing his story could help one more child, one more mother, one more life.
It would mean the world to me.
Thank you for walking this journey with me. I am grateful.