First, thanks for the prayers for Samuel. I am grateful. It was comforting to know that the gates of heaven were being stormed on my sweet Samuel’s behalf.
We are home from the hospital.
Samuel is almost completely diagnosed with Celiac Disease. The last steps will be the results of one more lab test and then a biopsy of his small intestine.
I had to fight for him. And I mean fight.
I am too tired to write my hospital story at this moment. But, I will. And I will because I want you to know how much we fought (my good friend Amy and I) for Samuel. We had nurses who saw how sick he was — nurses who commented that he needed to be here. And yet, we still had to fight to convince and prove to the doctors that he really was sick.
He was. He would barely wake up on Saturday. Was ultra lethargic. And was falling over.
They told me (on Saturday at his clinic) that he just had the flu and to come back in a week.
He was so sick. I knew it.
I knew it in my momma’s heart.
They couldn’t tell me I was wrong.
I am so thankful to have fought for him.
So thankful.
Thank you again for your prayers.
37 comments
Moms know their kids better than anyone. Way to fight for your child! Praying that Samuel starts feeling better really soon now that they know the problem.
I have been praying so hard for you guys today! Keep fighting.
Glad to hear sweet Samuel is home again. Praising God for answered prayers.
Continuing to pray,
Brianna
My. God. Rachel. Bless. You.
I am so thankful he is better and you are getting some answers, but from one a Mother to another my heart goes out to you at having to fight in such a way.
Thanks be to God for directing your paths.
It’s so good to hear that he’s home! I will most certainly keep your precious Samuel in my prayers!!
God bless you!
Eldarwen
Praying for your Samuel and you. Rest up when you can. Rest in the Lord always.
(I just realized my word verification is rests.)
Thank goodness he is okay. Rest up.
Rachel,
I am so sorry to hear about what you have been through these past few days with your sweet boy. I am sorry that you had to fight so hard to be heard and for treatment and tests to be done. We do know deep down when something isn’t right and I’m glad that you persisted. You knew.
So glad that he is feeling better and you are closer to a diagnosis. Praising God for answered prayers. I will be praying for you all.
Much love,
Stacy
Been praying… will continue to do so. Our God is a prayer answering God and He will fight for you!
Much love and prayers,
Ruth
Continuing to pray for you, your sweet Samuel, & for your family!!
Jessica
Praise our God that a diagnosis was made! How relieved you must be knowing this is very treatable.
I will continue to pray for you all.
Sleep well sister,
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Isn’t it great how the momma bear comes out? It’s almost scary how strong the emotion can be when it has to be. So glad you are getting some answers. Poor little guy! And poor mom!
My childhood friend almost died from celiac disease as a baby because it took forever to diagnose her (this is 39 years ago). But two of her three kids have it as well and they were diagnosed in early childhood and they are all doing fantastic! There are some wonderful support groups and forums out there now.
Prayers for all of you!!
Now you can fight to make Samuel the healthiest he can be. Prayers to you. My brother in laws family has suffered with this and his sister went undiagnosed for years. We will continue praying!
it’s good to hear that you are getting to the bottom of this. poor baby samuel. and i know how much a mama’s heart aches when her baby is sick. i’ve been praying that the doctors would have the wisdom and desire to find out what was ailing him, but also prayed it would be something easily remedied and nothing serious. although celiac will be tough, there is a remedy. i’m so very thankful to the Lord for hearing our prayers. continuing to pray for all of you, always! love and hugs!
Been praying for Samuel! Much much love to you.
So glad you are home, and so glad that they listened to your momma instinct…still praying for you all!
Good for you! I think it is sad that mothers have to be such warriors in a hospital, but I’m glad that you did it. Samuel is blessed to have you. I’m interested to hear the story when you are able to tell it.
I am sending so many prayers up for you guys!!!
Keep fighting and make them listen.
So much love.
so glad that you fought for him and were able to get some answers!
there is nothing like a momma’s intuition (holy spirit). I have had an experience with my own when I had my infant have a near sids incident…trying to send me home and I plopped my bum right down and would’t move cuz I KNEW something was not right. Good for you for fighting for your babe, good for you. I’ll keep praying!
What a sweet, sweet boy. Way to fight, momma bear! I’m so glad you were able to get some answers and can now move forward with getting him better!
i learnt from my second child that mumm knows best…the instinct is strong…hope he gets better now that you know whats going on…xxxx
I haven’t been able to blog for some time until today, so didn’t know what was going on. I’m so glad so many have been praying for Samuel… so sorry about his sickness. Good for you for listening to your mommy instincts! In my prayers now as well…
Corine
Can I just say that it fills me with so much anger when I hear stories about how difficult it is to get help with the medical system. Doctors especially seem prone to brushing off mothers as being hysterical or overdramatic about their children. It just makes me so angry. I’ve been that Mama Bear in the hospital. I’m so glad you were able to be that Mama Bear too. I just wish we didn’t have to be.
Hope your sweet little man is on the road to feeling better.
I am so sorry you had to fight so hard to get answers. I am thankful for the Holy Spirit in you that did not back down. Praying for sweet peace and rest over both you and Samuel tonight.
glad you are home…you are right that you have to FIGHT, but when you know you know…I looked up celiac and it looks like something that is going to require a lot of attention to diet (sounded a bit overwhelming) I hope that you are doing ok…
april
Good for you for sticking with your instincts. I’m glad you have an answer as to what was wrong, and that it’s something that can be managed easily enough. Hope the little guy is feeling better soon. Must have been such a scary experience.
Thank goodness for mommies like you who fight for their babies!!!! His sweet pink cheeks in that last picture break my heart. Praying for you and for Samuel!
I wanted to send you a little encouragement. First, I am glad you and your boy has got to go home. Hospitals are no fun, although it looks as if he found something of interest! I have a boy with PKU. He is on a protein free diet. Many of the websites I order his food from is also tailored for gluten-free diets as well. We were quite overwhelmed when he was first diagnosed but he grew up not eating meat. Everyone says poor boy but I thank God every day that we live in an age where there could be a diagnosis and a way of treatment. I will keep you family in my thoughts and prayers. Feel free to contact me if you need someone to talk to or anything else.
I’ll be praying!
P.s. me and half of my siblings are on the gluten free diet and know it can be rough! Always in my prayers!
Praying hard for Samuel and your family!
Still praying for Mr. Samuel. God gifted up with a “mommy gut feeling” and it is powerful.
Yes! I can’t agree more with Kelli. I call this “The Mommy Instinct”. It is just in us! Hoping for a speedy recovery soon and take care.
I read your daughter Hannah’s blog, Aspire – and when I read about her little brother, my heart was touched. I just wanted to let you know that all of your family will be in my prayers. I can’t imagine what it would be like for one of my little siblings to be diagnosed with such a difficult illness – difficult both for you and for your family. So I want you to know that even though we’ve never met, I’ll be before the Lord on your behalf. May He bless you with grace, your family with patience and love, the doctors with wisdom, and little Samuel with strength to overcome this trial.
Hugs!!!
Hannah
So glad you are getting some answers. Good job fighting – what a great mama! Praying for you on this journey.
you look like a mama bear fighting
for her little cub. way to go! i will
keep praying for your sweet samuel.
Glad you hung in there! We had too as well. Numerous trips to the doctors, two trips to the hospital for several days. If you son respons like our daughter to the proper diet, you will see a positive difference in days. We’ll be praying for that. God bless.