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Celiac Diseasegluten freeSamuel

i not eat gooten

by Rachel Marie Martin June 23, 2012
by Rachel Marie Martin
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Those were the words of Samuel this morning.

He was wandering around the living room, carrying his lego guy and a board book with the letter c on the cover, and came up to me with his getting too long blond hair and told me i not eat gooten. Translated? I not eat gluten. I’m not sure what brought it up, really, but honestly, there isn’t a day where the subject of gluten free doesn’t come up.  Jut this morning we were reading that c boardbook, and on a page was a picture of a cupcake and Samuel points to it and tells me it’s gluten free.

I wonder how much he thinks about gluten free.

He certainly strives to make sure that his world is balanced and fair and that his gluten free reality doesn’t feel limiting. Even though I know that it actually is limiting – birthday cakes, church nursery and goldfish, playdough, sunscreen, potlucks, and more. Each of those things would be cause for me to pause, investigate, and devise a solution for Samuel. Bring his own cake, no nursery or I bring all the snacks, buy gluten free playdough and always tell nursery/preschool/friends no playdough, find gluten free sunscreen, bring food for potlucks — you see — it affects everyday facets of his life.

I not eat gooten.

That’s my boy. The one I love so dearly – the one I fight for and share my heart about Celiac Disease and living gluten free. And that’s why, once again, I am so blessed to be able to devote time to sharing our story, offering advice, gleaning advice, finding amazing recipes, finding support, and developing community on the Udi’s Gluten Free Board.  So today I’m asking you what you’re interested in learning more about – diagnosis? living everyday gluten free? some of our favorite gluten free resources? protecting Samuel’s gluten free heart? – so that I can begin to answer those questions and help and encourage. And, within the next several weeks I’m going to set up a live chat on the Udi’s site and I’d love to use that time to answer those questions even further.

Why do I do this? Why is this my heart? It is because of that i not eat gooten boy that is playing cars in his room and gets his hands blue with paint and my desire for his life to be as normal as possible. And that includes me fighting for awareness, sharing our story, and being encouraging to others walking this gluten free journey as well. Thanks for walking with us.

Here’s my latest forum topic and question on the Udi’s Gluten Free Board {not sure why it’s pulling my words twice – just ignore that}. Within the last week I’ve chatted about gluten free sunscreen, favorite foods, and more. I’d love to have you join the chat with me over there. And please do let me know of live chat options. Thank you! Feel free to answer the chat prompt about gluten free birthdays {or other food allergies how you handle birthdays} in the prompt box or in the comment section.

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Rachel Marie Martin

Rachel Marie Martin is the author behind Finding Joy and the books, "Get Your Spark Back," "Mom Enough," and "The Brave Art of Motherhood." She is fiercely passionate about living an authentic, joy-filled and driven life and because of that writes powerful truth for others hoping to be the catalyst for change.

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13 comments

Angel June 23, 2012 - 6:40 pm

My son was diagnosed with celiac just after he turned 3. We have a bag of some of his favorite foods and snacks that goes EVERYWHERE with us. For parties we take a GF cupcake for him. Thankfully he has adapted to and graciously accepted the GF lifestyle. I pray it continues as he ages. Starting kindergarten in 2 months. Another world of worry then!

Reply
Michelle June 24, 2012 - 1:13 am

That is precious! I have been gluten/dairy free for a while now. My daughter and I just made peppermint sugar cookies with jimmies on top and they didn’t event taste gluten/dairy free. They were so yummy!

I love how well your son is adjusting to this-he is a trooper!

Reply
Amanda McCusker June 24, 2012 - 2:27 am

I have never heard of Celiac disease, but after some research it sounds challenging, especially for someone so young. It is so good that he is already understanding what he can and can’t eat. How did you discover he had Celiac? It seems pretty difficult to diagnose accurately. Pray he continues to learn and grow and be a normal kid even with his GF diet.

Reply
Angela June 24, 2012 - 2:51 am

I ask the host what is on the menu and bring safe versions for my son. My son 7 and has never complained about not getting the party cake. He knows it’s dangerous for him and is perfectly satisfied having his own cupcake. I also have taught him to make sure no one touches his food. (He has severe multiple food allergies.)

I always bring food everywhere we go. It doesn’t bother him. At our church our pastor and his wife make a point to check out what good things our son is eating. He gets such a big kick out of it… and he has such a big heart that he is willing to share his food! I always remind him not to eat until all of us are eating.

I sometimes keep extra cupcakes and cookies in the freezer for parties, trips to a friends, grandma’s, etc.
We carry an emergency medicine bag everywhere we go… but it also has a stash of safe candy & snacks!
This is our “normal” for my son and he doesn’t think twice about it. I have different food bags for different occasions. One for party settings (a superhero lunch box), one for carry-in meals at church (it’s a larger one for more food), a small one for cold deserts.

Reply
Lynn June 24, 2012 - 6:26 am

We’ve been having several events at church this week which means two meals at church plus snacks…and every one of them had at least something Samuel could have eaten! Lots of gluten free at church this week!
Lifting up prayers right now!
Psalms 20:5-7 We will rejoice in thy salvation, and in the name of our God we will set up our banners: the LORD fulfil all thy petitions. Now know I that the LORD saveth his anointed; he will hear him from his holy heaven with the saving strength of his right hand. Some trust in chariots, and some in horses: but we will remember the name of the LORD our God.
My email address

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